It’s interesting that I finished off last month’s Me and Mine post with the reflection that for families like ours every month is heart month and CHD is always at the forefront of my mind. The day after that post went live saw Jessica’s first unplanned hospital admission in three years thanks to a chest infection which was probably the cause of the persistently low oxygen saturations that she’d had for a couple of weeks. Thankfully she improved quickly after being given IV antibiotics and only needed to stay in hospital for a couple of nights.
This month starts and ends with hospital visits – Jessica’s admission to hospital at the start of the month and her cardiology check-up tomorrow. I’m always a little nervous in the run-up to cardiology check-ups. This time I’m even more nervous. It will be our first appointment since our lovely consultant retired. I suspect we will discuss when Jessica’s next surgery is likely to take place.
This month has also seen us becoming more aware of how Jessica’s heart condition affects her day to day. With the start of the nicer weather, we have been able to get out and about more. We’ve realised that the buggy is essential for longer walks. It is not Sophie who needs it though, it is Jessica. Jessica is now outgrowing the buggy, and will need something more suitable as she gets bigger. It’s an awareness that has come as a slight shock. On the one hand, we’ve always been aware that her heart defect has an impact on her day-to-day life and yet medicines, check-ups and extra vigilance aside, we’ve often pushed that thought aside. We’ve focused on the normal side of family life, not the things that make our family life different.
Hospital admissions and cardiac concerns aside, we have been enjoying “normal” family life this month, getting out and about as much as possible. This month’s photos are a real mixture. The first is the family photo we had taken whilst at the Zookeeper Zoe launch event. The second photo was taken over the Easter weekend of us enjoying a family day out at Cliveden.
Our final family photo is not our best family photo but it is special nonetheless. It’s the first family photo that Jessica has taken of us. She wanted to play with my camera and take a photo of us all. I helped her perch it on some boxes on a chair and put it on self-timer. We all then sat on the sofa while Jessica pressed the button and ran back to sit with us all. She looks very proud of herself!
Three family moments from the last month. Three snapshots of us enjoying time together in amongst the ups and downs that come with life as a heart family.