I used to post quite regularly during heart month to try and raise awareness of CHD. Sharing our story to try and bring hope to other families or to raise awareness of research that might help other heart children. Sharing our experiences in Facebook groups to help other families going through similar experiences. I wanted… Read More
Disclaimer: Heartline and MedicAlert contacted me to raise awareness of this project. I have not received any compensation for sharing this post. February is Heart Month. In the past, I have shared posts to help raise awareness of congenital heart defects, and how they affected day-to-day life for children like Jessica. One of the… Read More
This week (2nd – 8th December) is National Grief Awareness Week – a week which aims to normalise grief and get people talking about it. Many people feel uncomfortable around those who are grieving and it’s all too easy for grief to become a topic to avoid. I have always tried to be open when… Read More
Sophie took part in her first Remembrance Sunday parade this week. She did so well marching with her Girls’ Brigade friends and staying silent to remember those who have fought and died in war. I always find the remembrance service very sobering and moving and even more so this year. I couldn’t help but remember… Read More
If you’d asked me to describe our daily life with Jessica, I would have said it was pretty normal. All the things that came with having a child with a complex heart condition were just part of our everyday life. We did them without really thinking about them and never really noticed their impact. It… Read More
Yesterday, we said our final goodbyes to Jessica as we celebrated her life at church with family and friends, and then laid her to rest in her forever bed. It was a day of sadness and smiles, tears and laughter and one in which we as a family felt truly surrounded by love. Our church… Read More
This is the post that I always feared I would one day have to write. It breaks my heart to be writing it now. Our beautiful Jessica passed away in the early hours of this morning. She had been unwell on and off for several weeks after returning to school. We had several doctor’s visits,… Read More
