Sophie took part in her first Remembrance Sunday parade this week. She did so well marching with her Girls’ Brigade friends and staying silent to remember those who have fought and died in war. I always find the remembrance service very sobering and moving and even more so this year.… View Post

A terrible freedom – life after the loss of …

A terrible freedom – life after the loss of a child with a disability

If you’d asked me to describe our daily life with Jessica, I would have said it was pretty normal. All the things that came with having a child with a complex heart condition were just part of our everyday life. We did them without really thinking about them and never… View Post

A little girl with a special heart

A little girl with a special heart

Yesterday, we said our final goodbyes to Jessica as we celebrated her life at church with family and friends, and then laid her to rest in her forever bed. It was a day of sadness and smiles, tears and laughter and one in which we as a family felt truly… View Post

Journey’s end

Journey’s end

This is the post that I always feared I would one day have to write. It breaks my heart to be writing it now. Our beautiful Jessica passed away in the early hours of this morning. She had been unwell on and off for several weeks after returning to school.… View Post

Musings of a heart mummy: why I don’…

Musings of a heart mummy: why I don’t get excited about seeing my baby on scan

​​I suppose there was once a time when going for a scan was exciting. When it was an opportunity to see my baby again, something to look forward to. I don’t really remember that though. The first scan with Jessica wasn’t exciting. It was an early scan due to a… View Post