Like many other children with CHD, Jessica has needed several operations. Her heart can never be fixed – surgery can only help improve her heart function. The usual surgical pathway for children with hypoplastic left heart syndrome (HLHS) involves three procedures. These are the Norwood procedure, Glenn procedure and the Fontan completion. The aim of… Read More
It’s three years today since we were told that Jessica was unlikely to be suitable for surgery and that she would be offered comfort care after she was born. However, a throwaway comment about in-utero surgery at that appointment led us to the first step in Jessica’s journey. This pioneering procedure at 28 weeks’ gestation… Read More
This week (12-18 May) is Children’s Heart Week. I have two beautiful daughters, one of whom has a severe and complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This means that the left side of her heart is severely underdeveloped. We first discovered that Jessica’s heart had not developed correctly at our… Read More
It was inevitable that the week leading up to my birthday would see hubby even more sleep-deprived than me due to working into the early hours on events followed by early morning starts. Naturally my two small children didn’t quite realise that the best birthday present to give mummy would be a good chunk of… Read More
My journey of faith first started in my early twenties. From that quiet moment when something clicked through to facing a big challenge, my faith and trust in God has been a big part of my life. It has helped to give me hope and strength and provided comfort in times of darkness. This is… Read More
I’m doing 40acts for Lent this year and today’s act encouraged us to share our favourite Bible verse with the reasons why. One of my favourite verses is the following: “I can do everything through him who gives me strength.” (Philippians 4:13) This particular verse has helped me through some difficult times through… Read More
