CHD Awareness

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – November 2015

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on…

Two Important Ways to Give Your Baby’s Heart a Better Start

Raising awareness of congenital heart defects and the importance of the 20 week scan is something that is very important to me as a heart parent. I know that had…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – October 2015

Support and community are two of the things that I feel are very important as a heart parent – the knowledge that we are not alone in our journeys and…

Exercise advice for heart children – what is safe?

One of my day-to-day worries as a heart parent is trying to work out just how much exercise is safe for my heart child. I know that it is important…

Trusting the medical team and the uncertainty of change

I found out last night that Jessica’s cardiac consultant is retiring at the end of the year. It feels like a rug has been pulled out from underneath my feet.…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – September 2015

September is a very big month for us as a family – celebrating Jessica’s birthday and two of her heart days (one being on her birthday and the other just…

The fear that lurks within

There is a fear that lurks at the back of my mind. It is always there. Most days I can push it away, almost forget about but every so often,…

To Jessica on her 4th birthday

Darling Jessica, This time four years ago, we didn’t know if we would even have four days with you – to have been blessed with four years is just amazing.…

Thank you for being a friend: to those who support us on our journey as a heart family

Dear friends and family From the day we found out about Jessica’s heart condition, you have been there supporting us, encouraging us, praying for us. You have cried with us,…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – August 2015

The last month has given me a bit of a reminder of the uncertainty that comes with life as a heart family when Jessica’s sats were lower than normal at…