Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on…
Raising awareness of congenital heart defects and the importance of the 20 week scan is something that is very important to me as a heart parent. I know that had…
Support and community are two of the things that I feel are very important as a heart parent – the knowledge that we are not alone in our journeys and…
One of my day-to-day worries as a heart parent is trying to work out just how much exercise is safe for my heart child. I know that it is important…
I found out last night that Jessica’s cardiac consultant is retiring at the end of the year. It feels like a rug has been pulled out from underneath my feet.…
September is a very big month for us as a family – celebrating Jessica’s birthday and two of her heart days (one being on her birthday and the other just…
There is a fear that lurks at the back of my mind. It is always there. Most days I can push it away, almost forget about but every so often,…
Darling Jessica, This time four years ago, we didn’t know if we would even have four days with you – to have been blessed with four years is just amazing.…
Dear friends and family From the day we found out about Jessica’s heart condition, you have been there supporting us, encouraging us, praying for us. You have cried with us,…
The last month has given me a bit of a reminder of the uncertainty that comes with life as a heart family when Jessica’s sats were lower than normal at…