CHD Awareness

Jessica at a few weeks old asleep in a cot at John Radcliffe hospital

Children’s Heart Week Day 4: Hospitals

We’ve spent quite a lot of time in hospital over the last three years. Jessica has been under the care of six different hospitals since she was born for various…

Jessica on PICU after her Glenn procedure

Children’s Heart Week Day 3: Jessica’s HLHS journey so far

Like many other children with CHD, Jessica has needed several operations. Her heart can never be fixed – surgery can only help improve her heart function. The usual surgical pathway…

Jessica at the 20 week scan

Children’s Heart Week Day 2: The 20 week scan

It’s three years today since we were told that Jessica was unlikely to be suitable for surgery and that she would be offered comfort care after she was born. However,…

Jessica in intensive care after her Norwood procedure

Children’s Heart Week Day 1: Some facts about CHD

This week (12-18 May) is Children’s Heart Week. I have two beautiful daughters, one of whom has a severe and complex congenital heart defect (CHD) called hypoplastic left heart syndrome…

Jessica looking at some geese on a pond

Share your story: my journey of faith

My journey of faith first started in my early twenties. From that quiet moment when something clicked through to facing a big challenge, my faith and trust in God has…