CHD Awareness

Jessica sitting and looking at a pond

Reflections of a heart mummy: Living in limbo

We’re in limbo at the moment. Waiting for a date for the next heart surgery. Unable to look ahead once again.   Waiting for a date is hard. But as…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – August 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

A very smiley Jessica on the rocking horse at the park

Reflections of a heart mummy: it’s all in the little moments

It’s in the little moments that the reality of being a heart mum hits me most. The little moments that catch me off-guard and bring tears to my eyes. Seeing…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – July 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – June 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

A picture of newborn Jessica holding her daddy's hand in intensive care following her first open-heart surgery.

Tiny Tickers BBC Lifeline Appeal – how you can help save babies born with a heart defect

As many of my readers will know, my daughter Jessica was born with a complex congenital heart defect (CHD) which was detected at my 20-week scan. Jessica’s heart condition was…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – May 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

Jessica recovering from her third open-heart surgery

Six years on: our journey as a heart family

Six years on. Six years since the scan that changed our lives completely. The start of our journey as a heart family. One minute we were expecting a normal healthy…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – April 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – March 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…