CHD Awareness

Me holding Jessica in intensive care

The mummy I might have been: how did being a heart parent change me?

When does parenthood begin? That moment when everything changes; when that person we once becomes someone new; someone whose decision-making and thoughts are changed forever. Does it begin with the…

Steve and his Tuk Tuk at RAF Scampton

Travelling to the 12 corners of the UK in a Tuk Tuk for Healing Little Hearts

Our family challenge last year was to travel from Land’s End to John O’Groats on public transport. Last month, we attended the Land’s End-John O’Groats Association awards dinner in Torquay…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – February 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

Hands making a heart shape - Heart Month 2017: Jessica's Journey - our CHD story

Heart Month 2017: Jessica’s Journey – our CHD story

February is Heart Month – a month of raising awareness about congenital heart defects, the charities that help support heart children and their families and sharing stories about life with…

Hands forming a heart over a "zipper scar" with the logo for Tiny Tickers Heart Week 2017

Heart Week 2017 – help Tiny Tickers improve outcomes for babies born with heart defects

Raising awareness of congenital heart defects and working with heart charities to help improve outcomes for heart children is something that is very important to me. Each year, I get…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – January 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

Jessica and Sophie playing in the snow in the garden

The truth about winter and my heart child

Winter can be a challenging season for us. The cold weather brings an extra layer of worries with a heart child. One of the first things I notice as the…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – December 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

Me, hubby, Jessica, Sophie and Monty with Father Christmas

Me and Mine – November 2016

I can’t quite believe that we’re at the end of November already – and Christmas is now just around the corner! That said, we’ve started to get in the festive…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – November 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…