CHD Awareness

Taking it in her stride – reflections on a cardiac catheter procedure

Being back in hospital feels very strange and yet very familiar all at the same time.  For the first eight months of Jessica’s life, this ward was our second home…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – May 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

Five years on – a heart dad’s perspective

Five years ago today, hubby and I went off for the 20-week scan, excited at the thought of seeing our first baby on the screen.  We left the hospital that…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – April 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on…

Me holding baby Jessica on PICU

I’m a heart mummy but I’m not superhuman

I am a heart mummy. Sometimes people seem to think that makes me a bit of a super mummy. They tell me “you’re so brave”, “you’re so strong”, “I don’t…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – March 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – February 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on…

Useful organisations and support groups for heart families

Since the day we found out about our daughter’s heart condition, the support and information we have received through various organisations has been invaluable in helping us through our heart…

Outdoor fun with my heart child

Regular readers of my blog will know that we’re a family who love to get out and about as much as possible. My philosophy tends to be along the lines…

Action Medical Research: funding new research to help improve surgery for babies with HLHS

A few weeks ago, I was contacted by Action Medical Research, a charity which funds medical research on children’s disease. They wanted to use a photo of Jessica in their…