CHD Awareness

Outdoor fun with my heart child

Regular readers of my blog will know that we’re a family who love to get out and about as much as possible. My philosophy tends to be along the lines…

Action Medical Research: funding new research to help improve surgery for babies with HLHS

A few weeks ago, I was contacted by Action Medical Research, a charity which funds medical research on children’s disease. They wanted to use a photo of Jessica in their…

Ten facts about HLHS and my heart child - Little Hearts, Big Love

Ten facts about HLHS and my heart child

My daughter Jessica has a complex congenital heart defect called hypoplastic left heart syndrome (HLHS). Children born with HLHS effectively have only half a working heart. Here are ten facts…

My top ten posts about congenital heart defects and life as a heart family

1) What it means to be a heart parent It took just seven words to change my entire life. Seven words which broke my heart, shattered my dreams and turned…

Taking my heart baby home for the first time: a milestone moment

The first time you take your baby home from the hospital is a milestone moment for everyone, but so much more so when it is a moment that almost up…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – January 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on…

Heart Week 2016: help Tiny Tickers improve survival rates for heart babies

February is all about hearts. For most people, the thought of hearts in February means Valentine’s Day. For me as a heart mummy, it’s all about National Heart Month, and…

New Year – a heart mummy’s perspective

A new year is like opening a book full of blank pages. Wondering what is going to be written on those pages. At the start of the new year, the…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – December 2015

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on…

How Christmas on the cardiac ward taught me to be thankful

The run-up to Christmas can be a very stressful time – so much to do, cards to write, presents to buy, parties to attend – busy, busy, busy. This time…