It took just seven words to change my entire life.
Seven words which broke my heart, shattered my dreams and turned my world upside down.
Seven words from which I emerged a stronger and more compassionate person.
“There’s something wrong with the baby’s heart.”
My most popular post by far describes what it really means to be a heart parent.
“I see you sitting there in that scan room. Cold with fear and the terrible realisation that something is wrong, very wrong with your baby’s heart. I see you clinging to each other, neither wanting to voice the terrible thought that fills both your minds – that your child will die. I see your tears, your pain and the little spark of strength that will ignite and grow and keep you going…”
If I could go back to the day that we first became heart parents, this is what I would tell myself.
Jessica’s heart condition was picked up at her 20 week scan; if it hadn’t been, she would not be here today. Her story featured as part of Tiny Tickers’ Big Tick campaign to help raise awareness of the importance of early detection of congenital heart defects and what questions expectant parents should be asking at the 20 week scan.
My husband shares his reflections on what it is like to be a heart dad, his fears and thoughts and just why he is proud to be a heart daddy.
Sharing some of the comments I have received as a heart parent – the assumptions people make about my heart child versus the reality.
Sharing some of the things I learned whilst preparing my heart child to start preschool for the first time.
A post from Helen who blogs at Heart Mummy, whose younger son has hypoplastic left heart syndrome, sharing her family’s journey.
A list of books aimed at trying to help children understand more about their heart conditions, why they have a “zipper” scar and the procedures that they may undergo in hospital.
Reflecting back over our heart family journey, three years on from Jessica’s second heart surgery.
Sharing some more details about hypoplastic left heart syndrome, the heart condition that Jessica has, and how surgery has ‘replumbed’ her heart to help it work more efficiently.