Sharing our experiences of parenting a child with a congenital heart defect
Yesterday, we said our final goodbyes to Jessica as we celebrated her life at church with family and friends, and then laid her to rest in her forever bed. It was a day of sadness and smiles, tears and laughter and one in which we as a family felt truly surrounded by love. Our church… Read More
This is the post that I always feared I would one day have to write. It breaks my heart to be writing it now. Our beautiful Jessica passed away in the early hours of this morning. She had been unwell on and off for several weeks after returning to school. We had several doctor’s visits,… Read More
I remember the first time I set foot in my home after Jessica was born. We’d been in hospital for a month. How strange my house felt, how I looked around as if I was seeing it for the first time. What was once familiar suddenly felt very unfamiliar. I was glad to be home… Read More
This morning finds us on the other side of Jessica’s heart surgery – feeling very relieved that it seems to have gone well and that Jessica’s first night post-op has been a relatively smooth one. She is still sedated and ventilated at the moment but the team are hoping to wake her up later. I… Read More
We should have been in hospital that afternoon, preparing for Jessica’s surgery the following day. Instead, we were enjoying spending time together as a family, and having fun at Langley Park. After a busy couple of months with hubby being away frequently, this was just what we needed. Time together to just have fun as… Read More
Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More
Yesterday we got the call that we’d been expecting and dreading. The date for Jessica’s next heart surgery. My world has shrunk to a few short weeks – a date in the calendar that I cannot see beyond. I know it has to happen. I know she needs this surgery, and that all being well,… Read More
