Sharing our experiences of parenting a child with a congenital heart defect
I used to post quite regularly during heart month to try and raise awareness of CHD. Sharing our story to try and bring hope to other families or to raise awareness of research that might help other heart children. Sharing our experiences in Facebook groups to help other families going through similar experiences. I wanted… Read More
Disclaimer: Heartline and MedicAlert contacted me to raise awareness of this project. I have not received any compensation for sharing this post. February is Heart Month. In the past, I have shared posts to help raise awareness of congenital heart defects, and how they affected day-to-day life for children like Jessica. One of the… Read More
Yesterday, we said our final goodbyes to Jessica as we celebrated her life at church with family and friends, and then laid her to rest in her forever bed. It was a day of sadness and smiles, tears and laughter and one in which we as a family felt truly surrounded by love. Our church… Read More
This is the post that I always feared I would one day have to write. It breaks my heart to be writing it now. Our beautiful Jessica passed away in the early hours of this morning. She had been unwell on and off for several weeks after returning to school. We had several doctor’s visits,… Read More
I remember the first time I set foot in my home after Jessica was born. We’d been in hospital for a month. How strange my house felt, how I looked around as if I was seeing it for the first time. What was once familiar suddenly felt very unfamiliar. I was glad to be home… Read More
This morning finds us on the other side of Jessica’s heart surgery – feeling very relieved that it seems to have gone well and that Jessica’s first night post-op has been a relatively smooth one. She is still sedated and ventilated at the moment but the team are hoping to wake her up later. I… Read More
We should have been in hospital that afternoon, preparing for Jessica’s surgery the following day. Instead, we were enjoying spending time together as a family, and having fun at Langley Park. After a busy couple of months with hubby being away frequently, this was just what we needed. Time together to just have fun as… Read More
