CHD

Sharing our experiences of parenting a child with a congenital heart defect

Yesterday, we said our final goodbyes to Jessica as we celebrated her life at church with family and friends, and then laid her to rest in her forever bed. It was a day of sadness and smiles, tears and laughter and one in which we as a family felt truly… View Post

Journey’s end

Journey’s end

This is the post that I always feared I would one day have to write. It breaks my heart to be writing it now. Our beautiful Jessica passed away in the early hours of this morning. She had been unwell on and off for several weeks after returning to school.… View Post

Moments that make life magical: an afternoon at …

Moments that make life magical: an afternoon at Langley Park

We should have been in hospital that afternoon, preparing for Jessica’s surgery the following day. Instead, we were enjoying spending time together as a family, and having fun at Langley Park. After a busy couple of months with hubby being away frequently, this was just what we needed. Time together… View Post

Heart to Heart – November 2017

Heart to Heart – November 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post

Preparing my child for heart surgery

Preparing my child for heart surgery

Yesterday we got the call that we’d been expecting and dreading. The date for Jessica’s next heart surgery. My world has shrunk to a few short weeks – a date in the calendar that I cannot see beyond. I know it has to happen. I know she needs this surgery,… View Post