Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

CHD: Unwanted stories?

10/02/202112/02/2021
Jessica on her bed in the cardiac ward drawing a picture

I used to post quite regularly during heart month to try and raise awareness of CHD. Sharing our story to try and bring hope to other families or to raise awareness of research that might help other heart children. Sharing our experiences in Facebook groups to help other families going through similar experiences. I wanted… Read More

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How Heartline can help provide MedicAlert medical ID jewellery for heart children

06/02/202106/02/2021
A boy wearing a MedicAlert bracelet

Disclaimer: Heartline and MedicAlert contacted me to raise awareness of this project. I have not received any compensation for sharing this post.   February is Heart Month. In the past, I have shared posts to help raise awareness of congenital heart defects, and how they affected day-to-day life for children like Jessica. One of the… Read More

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A little girl with a special heart

19/05/2018
A smiley Jessica on a fairground ride

Yesterday, we said our final goodbyes to Jessica as we celebrated her life at church with family and friends, and then laid her to rest in her forever bed. It was a day of sadness and smiles, tears and laughter and one in which we as a family felt truly surrounded by love. Our church… Read More

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Journey’s end

14/04/201803/09/2018
Jessica wearing a superhero mask with a superhero cape against a backdrop of buildings

This is the post that I always feared I would one day have to write. It breaks my heart to be writing it now. Our beautiful Jessica passed away in the early hours of this morning. She had been unwell on and off for several weeks after returning to school. We had several doctor’s visits,… Read More

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Re-adjusting to life at home after being in hospital

18/01/201812/07/2018
A drawing of Jessica in hospital and a drawing of us at home as a family after the hospital stay

I remember the first time I set foot in my home after Jessica was born. We’d been in hospital for a month. How strange my house felt, how I looked around as if I was seeing it for the first time. What was once familiar suddenly felt very unfamiliar. I was glad to be home… Read More

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Friday Focus 28/12/17 – On the other side of the surgery

29/12/201729/12/2017
Surgery - this week's word of the week

This morning finds us on the other side of Jessica’s heart surgery – feeling very relieved that it seems to have gone well and that Jessica’s first night post-op has been a relatively smooth one. She is still sedated and ventilated at the moment but the team are hoping to wake her up later. I… Read More

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Moments that make life magical: an afternoon at Langley Park

16/11/201715/11/2017
Hubby and Jessica on the swings at Langley Park

We should have been in hospital that afternoon, preparing for Jessica’s surgery the following day. Instead, we were enjoying spending time together as a family, and having fun at Langley Park. After a busy couple of months with hubby being away frequently, this was just what we needed. Time together to just have fun as… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about child loss, CHD, days out, crafts and family life.

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Top Posts

  • Home learning: Making a ‘Great Fire of London’ house
  • #30DaysWild - The ladybird life cycle
  • Crafting with kids: a simple lighthouse craft
  • Congenital heart defects: books for children
  • My struggle to bond with my second baby

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