CHD

Sharing our experiences of parenting a child with a congenital heart defect

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post

Tiny Tickers BBC Lifeline Appeal – how you can …

Tiny Tickers BBC Lifeline Appeal – how you can help save babies born with a heart defect

As many of my readers will know, my daughter Jessica was born with a complex congenital heart defect (CHD) which was detected at my 20-week scan. Jessica’s heart condition was so severe that we were told she was unlikely to be suitable for surgery after birth. Thankfully, a pioneering surgery… View Post

Heart to Heart – May 2017

Heart to Heart – May 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post

Six years on: our journey as a heart …

Six years on: our journey as a heart family

Six years on. Six years since the scan that changed our lives completely. The start of our journey as a heart family. One minute we were expecting a normal healthy baby. The next, we were heart parents. Our lives turned upside-down; excitement replaced by fear. Would our baby survive? What… View Post

Heart to Heart – April 2017

Heart to Heart – April 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post

Heart to Heart – March 2017

Heart to Heart – March 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post

The mummy I might have been: how did …

The mummy I might have been: how did being a heart parent change me?

When does parenthood begin? That moment when everything changes; when that person we once becomes someone new; someone whose decision-making and thoughts are changed forever. Does it begin with the birth of a new baby – when we “officially” become mummy and daddy? Or does it start further back with… View Post