Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

Heart to Heart – November 2017

15/11/201709/11/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Preparing my child for heart surgery

19/10/201729/04/2022
An illustration of Jessica having an ECG

Yesterday we got the call that we’d been expecting and dreading. The date for Jessica’s next heart surgery. My world has shrunk to a few short weeks – a date in the calendar that I cannot see beyond. I know it has to happen. I know she needs this surgery, and that all being well,… Read More

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Heart to Heart – October 2017

15/10/201714/10/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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The loneliness of 3AM

12/10/201711/10/2017
Jessica asleep in her bed

3AM. I am sitting between my children’s beds, holding a hand each as I wait for them to go back to sleep. Listening to my husband snoring. In this moment I feel so utterly alone.   Successive nights of interrupted sleep have broken me. 3AM is when I snap, when it all becomes too much… Read More

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Heart to Heart – September 2017

15/09/201712/09/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Reflections of a heart mummy: Living in limbo

17/08/201717/08/2017
Jessica sitting and looking at a pond

We’re in limbo at the moment. Waiting for a date for the next heart surgery. Unable to look ahead once again.   Waiting for a date is hard. But as hard as this is, the harder part is yet to come. Waiting for a date is far, far easier than that awful wait while my… Read More

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Heart to Heart – August 2017

15/08/201714/08/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

Top Posts

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