CHD

Sharing our experiences of parenting a child with a congenital heart defect

Our family challenge last year was to travel from Land’s End to John O’Groats on public transport. Last month, we attended the Land’s End-John O’Groats Association awards dinner in Torquay where we were presented with our certificates and Sophie won the Jack Adams/Richard Elloway trophy for being the youngest person… View Post

Heart to Heart – February 2017

Heart to Heart – February 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post

Heart Month 2017: Jessica’s Journey – our CHD story

Heart Month 2017: Jessica’s Journey – our CHD story

February is Heart Month – a month of raising awareness about congenital heart defects, the charities that help support heart children and their families and sharing stories about life with CHD. As many of my blog readers will know, my daughter Jessica was born with a complex CHD called hypoplastic… View Post

Heart to Heart – January 2017

Heart to Heart – January 2017

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post

The truth about winter and my heart child

The truth about winter and my heart child

Winter can be a challenging season for us. The cold weather brings an extra layer of worries with a heart child. One of the first things I notice as the weather gets colder is the change in Jessica’s colour. She is so much bluer in the winter than she is… View Post

Heart to Heart – December 2016

Heart to Heart – December 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your… View Post