CHD

Sharing our experiences of parenting a child with a congenital heart defect

Like many other children with CHD, Jessica has needed several operations. Her heart can never be fixed – surgery can only help improve her heart function. The usual surgical pathway for children with hypoplastic left heart syndrome (HLHS) involves three procedures. These are the Norwood procedure, Glenn procedure and the… View Post

Children’s Heart Week Day 2: The 20 week scan

Children’s Heart Week Day 2: The 20 week scan

It’s three years today since we were told that Jessica was unlikely to be suitable for surgery and that she would be offered comfort care after she was born. However, a throwaway comment about in-utero surgery at that appointment led us to the first step in Jessica’s journey.  This pioneering… View Post

Children’s Heart Week Day 1: Some facts about …

Children’s Heart Week Day 1: Some facts about CHD

This week (12-18 May) is Children’s Heart Week. I have two beautiful daughters, one of whom has a severe and complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This means that the left side of her heart is severely underdeveloped. We first discovered that Jessica’s heart had… View Post

Share your story: my journey of faith

Share your story: my journey of faith

My journey of faith first started in my early twenties. From that quiet moment when something clicked through to facing a big challenge, my faith and trust in God has been a big part of my life. It has helped to give me hope and strength and provided comfort in… View Post