Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

The truth about… the 20 week scan

03/11/201421/10/2017
Jessica at the 20 week scan

The 20 week scan. This is often referred to as a gender scan. It’s an exciting time, being able to see your baby again and find out its a boy or girl. However, there’s much more to this scan than finding out the baby’s gender. The 20 week scan, or anomaly scan, is to check… Read More

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Finding joy in the tough times

16/10/201421/10/2017
A tearful hubby looking at me having skin to skin with Jessica in the neonatal unit

Joy, for me, is more than just being happy. It’s a much deeper emotion and one that isn’t just linked to happy times. Some of my most joyful moments have been during the most difficult times of my life.   My pregnancy with Jessica was an incredibly joyous time. This might sound strange given that… Read More

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Heart to Heart – October 2014

14/10/201419/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about her heart journey a few weeks before she was born. Since her arrival, we have got to know other heart families, in person through our… Read More

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Jessica’s handmade heart

29/09/201403/08/2017
Jessica recovering from her third open-heart surgery

My daughter Jessica was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This is a complex CHD where the left side of the heart doesn’t form correctly. Basically this means that Jessica only has half a working heart. Babies born with HLHS need to have heart surgery in order to survive.… Read More

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Heart to Heart – September 2014

14/09/201419/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about her heart journey a few weeks before she was born. Since her arrival, we have got to know other heart families, in person through our… Read More

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Three years on: reflecting on our heart family journey

14/09/201419/07/2017
Hubby gazing down at baby Jessica on PICU

The two photos below were taken three years ago today. They capture some precious moments with Jessica as we prepared for her to go to theatre for the second time since she was born. I remember it like it was yesterday. The anxious waiting, not wanting to leave her cot for a moment. Wanting to… Read More

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Heart to Heart – August 2014

14/08/201419/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about her heart journey a few weeks before she was born. Since her arrival, we have got to know other heart families, in person through our… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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