The two photos below were taken three years ago today. They capture some precious moments with Jessica as we prepared for her to go to theatre for the second time…
Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about…
One of the things I find challenging as a heart parent is dealing with people’s assumptions about my heart child. While many of them are well-meaning, they can be frustrating.…
Our journey as a heart family began just over three years ago at a routine 20 week scan. We arrived at the scan that morning as excited parents-to-be, looking forward…
Six long weeks of not being able to give Jessica my milk due to a chylothorax felt like an eternity at times. Six long weeks of continually expressing to keep…
Today is the NHS’s 66th birthday. The Big Up The NHS campaign started in August 2013 on Twitter. This campaign aims to counteract the huge amount of negative stories about…
Sitting next to the hospital cot in the early hours of the morning, with my four month old daughter blissfully breastfeeding, I wanted to freeze the moment and hold it…
“If I was seeing this in a newborn baby, I would be advising against surgery as it is so unlikely to be successful.” I was 22 weeks pregnant with…
For Father’s Day, I asked my husband to share a post about his journey as a heart daddy. This is his raw and honest account of his feelings about the…
I am a heart mummy. From the day I discovered that my little girl’s heart had not formed quite as it should have done, I became part of a…
