CHD Awareness

The day I flashed Santa

The photo above was taken on Christmas morning on the cardiac ward. It was Jessica’s first Christmas and she had been transferred to the ward from the paediatric intensive care…

Jessica at the 20 week scan

An open letter to Dr X

Dear Dr X   I suspect it might have been another routine appointment for you. For us, it was a day when our world fell apart. A day when we…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – November 2015

CHD awareness is a cause that is very close to my heart and we’ve been doing our little bit to help raise awareness over this last month. Jessica’s story is…

Jessica at the 20 week scan

The truth about… the 20 week scan

The 20 week scan. This is often referred to as a gender scan. It’s an exciting time, being able to see your baby again and find out its a boy…

A tearful hubby looking at me having skin to skin with Jessica in the neonatal unit

Finding joy in the tough times

Joy, for me, is more than just being happy. It’s a much deeper emotion and one that isn’t just linked to happy times. Some of my most joyful moments have…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – October 2014

Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about…

Jessica recovering from her third open-heart surgery

Jessica’s handmade heart

My daughter Jessica was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This is a complex CHD where the left side of the heart doesn’t form…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – September 2014

Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about…

Hubby gazing down at baby Jessica on PICU

Three years on: reflecting on our heart family journey

The two photos below were taken three years ago today. They capture some precious moments with Jessica as we prepared for her to go to theatre for the second time…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – August 2014

Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about…