CHD Awareness

A copy of "Patch the Brave Heart Lion" and the text "Congenital heart defects: books for children"

Congenital heart defects: books for children

One of the challenges that I will face as Jessica gets older is trying to explain her heart condition to her. Having some children’s books about CHD will help us…

Review: Heart Warriors – Amanda Rose Adams

Amanda Rose Adams’ son Liam was diagnosed with several complex congenital heart defects (CHDs) at a second trimester ultrasound scan. His parents were faced with the choice to have a…

Stories from the heart: Northumberland Mam

Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from the lovely Kim who blogs over at Northumberland Mam. Kim and her…

A black and white photo of my hands forming a heart around Jessica's zipper scar

Black & White Photography Project #31

As it is CHD Awareness Week, I am sharing a photo of my little heart warrior and her zipper scar for this week’s black and white photography project.  Her scar…

An infographic summarising the different signs that your baby might have a heart defect. H - heart rate (too fast or too slow?) E - energy (sleepy, quiet or falling asleep during feeding?) A - appearance (pale, waxy, dusky, blue or grey skin colour?), R - respiration (too fast or too slow?) and T - temperature (cold to touch - especially hands and feet?)

Think HEART: the signs that your baby may have a heart defect

Congenital heart defects (CHDs) affect approximately 1% of all babies.  Around a third of these are detected during pregnancy and another third during the standard newborn checks that are carried…

From the heart

Our journey as a heart family has been very much at the forefront of my mind recently. Jessica had her cardiac check-up last week and whilst her heart function is…

Tiny Tickers – Heart Week 7th-14th February

February – a month that is all about hearts. Hearts, flowers, chocolates, Valentine’s cards. For me as a mummy to a child with a complex congenital heart defect (CHD), February…

A preschool bag and jumper

Preparing for preschool with a heart child

Last week saw a big milestone for Jessica as she started preschool for the first time. She took it all in her stride and seems to be thoroughly enjoying it…

A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – January 2015

This month has seen a significant milestone for my little heart warrior as she started preschool for the first time and I am so proud at how well she is…

Papery Peep – December

Amongst all the lovely Christmas presents I received were a few books from my lovely hubby who clearly knows my reading tastes very well as he chose the following books…