Review: Heart Warriors – Amanda Rose Adams

Amanda Rose Adams’ son Liam was diagnosed with several complex congenital heart defects (CHDs) at a second trimester ultrasound scan. His parents were faced with the choice to have a late termination or put their child through countless open-heart surgeries in order to give him a chance to survive. Heart Warriors is Amanda’s account of their journey as a heart family, from diagnosis, through Liam’s twelve surgeries to Amanda’s work in raising awareness of CHD and providing a support network to other families in similar positions.
Review: Heart Warriors - Amanda Rose Adams

The first half of the book is heartbreakingly raw and honest. Amanda’s account of how her world was shattered on the day she and her husband Jim found out about Liam’s heart defects and her descriptions of the agonising wait for surgery and the rollercoaster ride on the cardiac intensive care unit instantly transported me back to similar points on my own journey as a heart mum. In all honesty, I think I sobbed my way through most of the first half of the book – it so vividly described a world that was all too familiar, capturing the fear and the uncertainty of surgeries, rocky recoveries and anxiety for the future.

Later on, the book moves on to discussing living with the challenges of CHD – the fear surrounding your child’s mortality, the worries about how to help your child understand their condition and the impact on family life and siblings. Amanda shares a lot about how the heart community has helped her and how her acceptance that she is not in control of what happens in the future has also helped ease her fears. She also talks a lot about anticipatory grief – grieving the potential loss of your child before it happens. This was something I definitely resonated with although I had never recognised it as such before and it is something that I think a lot of heart parents will identify with.

Amanda’s moving account of her family’s heart journey and how she has drawn strength and comfort from the heart community is certainly one that I would recommend to other heart families to read but also one that I would recommend to the friends and families of those living with CHD to help them understand more about the journey and how they can be supportive.

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12 Comments

  1. February 9, 2015 / 11:54 pm

    Where did you buy this from? I haven’t heard of this book xx

  2. Louise
    Author
    February 10, 2015 / 12:18 am

    I think I bought it from Amazon. It’s also available on Kindle and iBooks x

  3. February 10, 2015 / 11:58 am

    I’ve never heard of this book either….I didn’t even know there was CHD books out there. Fantastic x

    • Louise
      Author
      February 10, 2015 / 10:44 pm

      It’s definitely one that I’d recommend reading – very well-written and beautifully describes life as a heart family x

  4. February 10, 2015 / 1:11 pm

    Looks like an incredibly moving book. Looks like I’d need to buy some hankies first. #triedtested

    • Louise
      Author
      February 10, 2015 / 10:45 pm

      Yes, I would definitely recommend having hankies or a tissue to hand!

  5. February 10, 2015 / 2:05 pm

    great review, sounds like an amazing book, and it’s good know that there are resources out there for parents so that they can gain support, and comfort.

    • Louise
      Author
      February 10, 2015 / 10:48 pm

      Thanks Jenni – it was a fab book, even if it was a bit of an emotional read!

  6. February 10, 2015 / 9:04 pm

    This must have been an emotional read for you. But its important to carry on raising awareness, so what a wonderful book. Thanks for sharing x xx

    • Louise
      Author
      February 10, 2015 / 10:50 pm

      Thank you – it was a very good book, even if it was quite emotional for me to read it!

  7. February 16, 2015 / 9:34 pm

    It sounds like a fantastic book and a really supportive read for parents finding themselves in the same position.
    Thanks for linking up with #TriedTested this week x

    • Louise
      Author
      February 16, 2015 / 11:00 pm

      It was definitely one I’d recommend. Lovely to link up to #TriedTested again 🙂

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