Yesterday was the third anniversary of Jessica’s Norwood procedure. The surgery that day was long and difficult and shortly after Jessica had been stabilised on PICU following the surgery, she had to have her chest re-opened to remove a blood clot. I still vividly remember our terror as we waited in the parents accommodation, both of us convinced that we were about to lose her. What a huge blessing it is this year to be able to enjoy the build up to Christmas as a family of four and see our little miracle running around, removing baubles off the tree and trying to rearrange them!
This month I’m linking up my post about that first Christmas on the cardiac ward and Jessica’s latest update from her blog.
For those who haven’t encountered my heart families linky before, here is a summary of what it’s all about:
Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about her heart journey a few weeks before she was born. Since her arrival, we have got to know other heart families, in person through our stays in the hospital, but also online through social media and blogging. It has been hugely helpful for us as a family to hear stories of other heart families which have helped give us hope and encouragement, but also made us realise that we are not alone in our struggles; that we are part of a community of other heart families. I started this linky in the hope that sharing stories would help other heart families out there too.
The linky opens on the 15th of each month and stays open for a week so there is plenty of time to share. You can share old posts or new posts, updates on how your heart child is progressing, poems, advice – whatever you like as long as it is related to life as a heart family. If you would like to add the code below to your post that would be great and please do visit other posts in the link too!