We’ve spent quite a lot of time in hospital over the last three years. Jessica has been under the care of six different hospitals since she was born for various reasons. She was born at Princess Anne Hospital in Southampton. Shortly after birth she was transferred to Southampton General Hospital.… View Post

Children’s Heart Week Day 3: Jessica’s HLHS …

Children’s Heart Week Day 3: Jessica’s HLHS journey so far

Like many other children with CHD, Jessica has needed several operations. Her heart can never be fixed – surgery can only help improve her heart function. The usual surgical pathway for children with hypoplastic left heart syndrome (HLHS) involves three procedures. These are the Norwood procedure, Glenn procedure and the… View Post

Children’s Heart Week Day 2: The 20 week scan

Children’s Heart Week Day 2: The 20 week scan

It’s three years today since we were told that Jessica was unlikely to be suitable for surgery and that she would be offered comfort care after she was born. However, a throwaway comment about in-utero surgery at that appointment led us to the first step in Jessica’s journey.  This pioneering… View Post

Children’s Heart Week Day 1: Some facts about …

Children’s Heart Week Day 1: Some facts about CHD

This week (12-18 May) is Children’s Heart Week. I have two beautiful daughters, one of whom has a severe and complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This means that the left side of her heart is severely underdeveloped. We first discovered that Jessica’s heart had… View Post

Siblings – May 2014

Siblings – May 2014

I love watching my girls together. They are (mostly) very loving towards each other. Jessica’s first reaction on seeing her sister in the morning is usually “Baby Sophie! Hold hands, baby! Baby kiss!” and Sophie just gives her the biggest gummiest smile. I am sure that Sophie reserves her biggest… View Post

It was inevitable

It was inevitable

It was inevitable that the week leading up to my birthday would see hubby even more sleep-deprived than me due to working into the early hours on events followed by early morning starts. Naturally my two small children didn’t quite realise that the best birthday present to give mummy would… View Post