I have seen this essay shared many times by other heart parents, and parents of children with additional medical needs. It is a beautifully written piece and one which helps…
This week’s word of the week is:It’s been quite a significant week for my two girls. On Sunday, Sophie sat without being supported for the very first time during crèche…
Feeding is something that can be a big cause of concern for parents of children with CHD. They often require more calories than heart-healthy children but can get quite tired…
We’ve spent quite a lot of time in hospital over the last three years. Jessica has been under the care of six different hospitals since she was born for various…
Like many other children with CHD, Jessica has needed several operations. Her heart can never be fixed – surgery can only help improve her heart function. The usual surgical pathway…
It’s three years today since we were told that Jessica was unlikely to be suitable for surgery and that she would be offered comfort care after she was born. However,…
This week (12-18 May) is Children’s Heart Week. I have two beautiful daughters, one of whom has a severe and complex congenital heart defect (CHD) called hypoplastic left heart syndrome…
I love watching my girls together. They are (mostly) very loving towards each other. Jessica’s first reaction on seeing her sister in the morning is usually “Baby Sophie! Hold hands,…
