Jessica’s surgery has had to be rearranged yet again. This time we made it into hospital, had an overnight stay and got Jessica ready for the surgery in the morning, only to be told that the surgeon was unwell, PICU was full and the surgery would have to be postponed again. I know… Read More
We’re getting closer and closer to the new date for Jessica’s surgery. At the moment, I feel quite calm about it all, although I suspect that may change over the weekend as the reality of going back into hospital hits home again. This week has been all about enjoying the ordinary little moments of family… Read More
I wasn’t sure if I would be sharing my usual Friday Focus update this week because Jessica was due to have her surgery yesterday. However, we were warned on Tuesday evening that the ward and PICU were both very busy and to wait for confirmation of a bed before leaving home on Wednesday. As we’d… Read More
As the date for Jessica’s surgery draws closer, I find myself drawing comfort and strength from my faith. Reminding myself that I don’t have to rely on my own strength to get through this; that I am not alone.  In those moments when my fear overwhelms me, I have poured my heart out in prayer,… Read More
Half-term hasn’t quite gone as planned but I’ve been doing my best to enjoy it. Sophie was supposed to have her birthday party last Saturday. Unfortunately both girls came down with a tummy bug on Friday and we had to cancel the party. It was disappointing but couldn’t be helped. Once we were… Read More
The countdown for Jessica’s heart surgery has begun. Earlier this week we had the phone call from the hospital letting us know the date. Jessica will be going into hospital on 8th November and having her surgery on 9th November. Our focus now is on making sure we prepare her for it as best we… Read More
I’ve found it a bit of a struggle to get through this week. Hubby has been working crazy hours again and is now away for the next week. The girls have been quite restless during the night and I’ve seen 3am too many times as a result. I’m tired, my patience levels are low and… Read More