Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More
Friday 13th is traditionally considered to be unlucky.  This time five years ago, it was the worst day of my life – the day when we were told that our unborn baby’s heart defect was so severe that it was highly unlikely surgery would be a feasible option. An appointment where we’d prayed for a… Read More
Five years ago today, hubby and I went off for the 20-week scan, excited at the thought of seeing our first baby on the screen. We left the hospital that day with our world having changed forever.  There was something wrong with our baby’s heart. Five years ago today, we became heart parents. … Read More
A sunny afternoon, watching my girls having fun together. Listening to the squeals of delight, the giggles as they chase each other round and round. Watching the way they wander off hand in hand together. And I stop and think – this is my perfect moment. This is what matters most; this is what really… Read More
Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More
Yesterday was Jessica’s cardiac check-up. I’d felt more anxious in the run-up to this appointment than I had for a check-up in a while. Partly because of our old consultant leaving but mostly because I knew we would be discussing Jessica’s next surgery. We met our new consultant and Jessica had her echocardiogram, ECG and… Read More
It’s interesting that I finished off last month’s Me and Mine post with the reflection that for families like ours every month is heart month and CHD is always at the forefront of my mind. The day after that post went live saw Jessica’s first unplanned hospital admission in three years thanks to a chest… Read More