Friday Focus 22/06/18 – Unanswered questions

The end of the week is always the hardest part of the week. It’s at this point in the week that the memories of those last days with Jessica come back the most and often with those memories come questions. Did I ask the right questions when we were in hospital? Would Jessica still be here if we hadn’t been discharged from hospital? Should I have taken her back in? Was there more I could have done to save her? Did I fail her?

 

Questions - this week's word of the week

 

The questions are not as relentless as they were initially. They come in waves. I let them come, knowing that this is part of my grief journey. I know that in many ways, those questions are futile. Asking them cannot bring Jessica back. I can’t go back and take a different path and see whether it would have made a difference. I will never know for sure whether I could have done more. Our decisions at the time were made with the knowledge we had at the time.

 

It is ten weeks since I woke up, grateful for a night in my own bed after two nights sleeping in a chair. Grateful to be waking up at home with my two little girls; grateful that Jessica had had a more settled night and seemed to be coughing less. I had no idea that it would be our last day together. While Jessica was clearly still quite poorly, there seemed to be signs that she was getting better. She ate all her breakfast and asked for more; she sat at the table and did a jigsaw. Later that evening, I was grateful for the fact that I’d cooked her favourite dinner and she’d eaten it all, plus pudding and a bag of prawn crackers left over from the previous night’s takeaway. When she woke me in the early hours, I was initially a bit grumpy over the prospect of an unsettled night; wanting only to get her settled again so we could all go back to sleep. I had no idea that these were our last moments together; that just an hour later, our lives would be shattered.

 

The biggest questions of all have yet to be answered. What was it that caused Jessica’s death? Why did she leave us so suddenly? We still have no clear answers to those questions and we may never have them.

 

This week, we have been for genetic testing. We are still waiting for results from Jessica’s post-mortem although we have learned that Jessica had a small deletion on one of her chromosomes. The geneticist feels that it is unlikely to have any significance with regards to either Jessica’s death or her heart condition but we have been tested to see if either of us carry the same deletion. The results will take around six weeks and are part of the post-mortem investigations so it will be at least a few more weeks before we have any potential answers from that – if any answers have yet been found.

 

Things that have made me smile over the last couple of weeks

 

Sophie picking raspberries in the garden

 

  • Seeing Peanut on scan and having my care transferred to a new consultant who is much better than the last one!

 

  • A surprise second birthday celebration when meeting up with a friend especially as my birthday was several weeks ago!

 

Sophie and her friend waiting for me to blow the candles out on my birthday cake

 

  • Listening to Sophie talking to Jessica and telling her what she was doing as she played with toys next to Jessica’s forever bed.

 

  • Spending time with friends and celebrating with them to mark 10 years of the group they organise to take disabled children to Lourdes each Easter.

 

 

  • A fun day out at Legoland with Sophie and her friends from preschool.

 

Sophie looking at the new Miniland USA area

 

  • Watching Sophie have fun with friends thanks to managing to organise a few more playdates for her.

 

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6 Comments

  1. June 22, 2018 / 10:16 am

    I can’t imagine that you can stop the questions from swirling round in your head, all of the what ifs, and what abouts, though as you say, they are all a part of the grief. Just as reliving Jessica’s last day must be, I am glad she did have a better day that day and got to eat her favourite foods. I hope you can get some answers from the genetic testing, everything just seems to take so much time, doesn’t it? It looks like Sophie’s had a fun week and how lovely to see Peanut and be transferred to a better consultant x Thanks for sharing with #WotW

  2. June 22, 2018 / 12:29 pm

    Ah Louise this is heartbreaking. Any one can see what wonderful parents you are. You will get your answers but you did all you could. I cant imagine what you are going through and imagine the grieving process in itself a cruel thing to go through. I am so glad you have a new consultant as I am sure that will not be helping at a time you need support. Sending love to you all x

  3. June 22, 2018 / 1:59 pm

    I cannot imagine or begin to understand what you are feeling, I can imagine the number of questions you have. I guess that will be consistent until you get answers. I’m so glad that she was happy and full of life and a belly filled with her treats on her last day. I hope Sophie has a lovely weekend x

  4. June 22, 2018 / 8:19 pm

    You have so many questions and I can’t imagine how you feel not knowing the answers….I hope you do eventually get a clear answer about why Jessica died. Not knowing must be the worst but I am sure you did everything you could for her.
    Lovely photos x

  5. June 22, 2018 / 9:26 pm

    It sounds as if you already know that the questions are and probably will always be fruitless, they are a part of the grieving process, in my opinion they are the worst part. It doesn’t matter what happened there will always be questions. I still have questions that keep me awake 9 years on. You also know that you did nothing wrong and you couldn’t change anything that happened. I think of you often, I can’t imagine how hard it is for you. Keep taking those moments of joy from Sophie and Peanut, they are what will keep you going. Big hugs xx

  6. June 24, 2018 / 11:30 am

    I can’t imagine how hard the last 10 weeks have been for you all. It’s natural and a part of the grief process to question everything, it’s your mind trying to make sense of it all where there’s sadly no sense to be made. It must be so frustrating to have no answers still. I think it’s amazing that you still share the things that have made you smile each week, Sophie looks so happy and she’s growing so fast. Sending you love as always x

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