Sharing our experiences of parenting a child with a congenital heart defect
Amanda Rose Adams’ son Liam was diagnosed with several complex congenital heart defects (CHDs) at a second trimester ultrasound scan. His parents were faced with the choice to have a late termination or put their child through countless open-heart surgeries in order to give him a chance to survive. Heart Warriors is Amanda’s account of… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from the lovely Kim who blogs over at Northumberland Mam. Kim and her two daughters were all born with a CHD which remained undetected until a hospital visit for an unrelated concern. Here’s the story of her heart… Read More
As it is CHD Awareness Week, I am sharing a photo of my little heart warrior and her zipper scar for this week’s black and white photography project. Her scar is the outward sign of everything that she has endured to get to where she is today. I am so very proud of her and… Read More
Congenital heart defects (CHDs) affect approximately 1% of all babies. Around a third of these are detected during pregnancy and another third during the standard newborn checks that are carried out in babies born in hospital before they go home. This means however that around 1 in 3 babies with a CHD will go home… Read More
Our journey as a heart family has been very much at the forefront of my mind recently. Jessica had her cardiac check-up last week and whilst her heart function is currently looking good, the team are now starting to consider her next major surgery and when this is likely to take place. It would be… Read More
February – a month that is all about hearts. Hearts, flowers, chocolates, Valentine’s cards. For me as a mummy to a child with a complex congenital heart defect (CHD), February also has added significance with regards to hearts as it is National Heart Month, with Heart Week taking place from 7th-14th February. Since my daughter… Read More
Last week saw a big milestone for Jessica as she started preschool for the first time. She took it all in her stride and seems to be thoroughly enjoying it so far. However, it was a big step for me as a parent too. Going from having her home all the time to letting her… Read More