Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Author: Louise

Breastfeeding my heart child: a ban on mummy milk

01/07/201401/06/2018
A bag of little bottles of frozen expressed breastmilk

Sitting next to the hospital cot in the early hours of the morning, with my four month old daughter blissfully breastfeeding, I wanted to freeze the moment and hold it forever. This would be my baby’s last feed before she had to go off for open heart surgery. I gazed at her, watching her eyelids… Read More

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Me and Mine – June 2014

30/06/201431/05/2018
Me, hubby, Jessica and Sophie at Chateau Villandry

I’m at my happiest when it’s just the four of us, spending quality time together, creating precious memories. Twelve whole days together at the beginning of the month, enjoying a road trip around France, Monaco, Italy and Belgium – with a day trip to Sark thrown in – our first holiday abroad as a family.… Read More

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Silent Sunday 29/06/14

29/06/201431/05/2018
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Enjoying the sunshine: simple pleasures

28/06/201431/05/2018
Jessica having a picnic with her toys in the garden

One of the best things about the summer is being able to spend so much time outside, going out and about or just spending time in the garden. The girls love being able to play outside, not least because Mummy is much less distracted by chores than when we are stuck inside!   Sophie loves… Read More

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Word of the Week 27/06/14 – Outings

27/06/201431/05/2018
Outings - this week's word of the week

This week, we’ve been making the most of the sunshine and enjoying a few outings. Last Saturday, we had a fabulous day out at Peppa Pig world with some of the other heart families from the ward where Jessica was cared for following her heart surgery. Each year, the park gives some free tickets to… Read More

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In pursuit of a miracle: how in-utero surgery gave my child a chance to live

26/06/201429/07/2017

“If I was seeing this in a newborn baby, I would be advising against surgery as it is so unlikely to be successful.”   I was 22 weeks pregnant with my first baby. Two weeks’ earlier, at the 20 week scan, my world had fallen apart. Our baby girl had a serious and complex heart… Read More

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Breastfeeding my heart child: in the beginning

25/06/201431/05/2018
Me breastfeeding Jessica on the neonatal unit

There were many moments during my pregnancy with Jessica that I hardly dared hope I’d get to hold her living breathing form in my arms, let alone have the chance to breastfeed her. Hearing her cry as she entered the world was one of the most overwhelmingly joyous moments of my whole life. A fleeting… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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