Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Tag Archives: CHD

Travelling to the 12 corners of the UK in a Tuk Tuk for Healing Little Hearts

16/02/201705/04/2017
Steve and his Tuk Tuk at RAF Scampton

Our family challenge last year was to travel from Land’s End to John O’Groats on public transport. Last month, we attended the Land’s End-John O’Groats Association awards dinner in Torquay where we were presented with our certificates and Sophie won the Jack Adams/Richard Elloway trophy for being the youngest person to do the journey in… Read More

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Heart to Heart – February 2017

15/02/201705/04/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Heart Month 2017: Jessica’s Journey – our CHD story

02/02/201711/10/2017
Hands making a heart shape - Heart Month 2017: Jessica's Journey - our CHD story

February is Heart Month – a month of raising awareness about congenital heart defects, the charities that help support heart children and their families and sharing stories about life with CHD. As many of my blog readers will know, my daughter Jessica was born with a complex CHD called hypoplastic left heart syndrome (HLHS).  This… Read More

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Heart Week 2017 – help Tiny Tickers improve outcomes for babies born with heart defects

19/01/201705/04/2017
Hands forming a heart over a "zipper scar" with the logo for Tiny Tickers Heart Week 2017

Raising awareness of congenital heart defects and working with heart charities to help improve outcomes for heart children is something that is very important to me. Each year, I get involved in Heart Week in February to try and raise money for heart charities. For the last couple of years, I have been involved in… Read More

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Heart to Heart – January 2017

15/01/201705/04/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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The truth about winter and my heart child

12/01/201705/04/2017
Jessica and Sophie playing in the snow in the garden

Winter can be a challenging season for us. The cold weather brings an extra layer of worries with a heart child. One of the first things I notice as the weather gets colder is the change in Jessica’s colour. She is so much bluer in the winter than she is in the summer. Whilst her… Read More

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Heart to Heart – December 2016

15/12/201619/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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