As the date for Jessica’s surgery draws closer, I find myself drawing comfort and strength from my faith. Reminding myself that I don’t have to rely on my own strength to get through this; that I am not alone.  In those moments when my fear overwhelms me, I have poured my heart out in prayer,… Read More
Yesterday we got the call that we’d been expecting and dreading. The date for Jessica’s next heart surgery. My world has shrunk to a few short weeks – a date in the calendar that I cannot see beyond. I know it has to happen. I know she needs this surgery, and that all being well,… Read More
Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More
3AM. I am sitting between my children’s beds, holding a hand each as I wait for them to go back to sleep. Listening to my husband snoring. In this moment I feel so utterly alone. Successive nights of interrupted sleep have broken me. 3AM is when I snap, when it all becomes too much… Read More
Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More
I’ve been trying to stay strong and enjoy the summer holidays with my girls as much as possible but this week has seen cracks appearing in the façade. We had a phone call on Tuesday from Southampton with a proposed date for Jessica’s surgery. Unfortunately it happens to be right at the start of one… Read More
When we started the summer holidays, we didn’t know if we would get to the end without Jessica having her next heart surgery. In many ways we have been in limbo throughout the summer – not being able to look too far ahead; waiting for the phone call to give us the date for Jessica’s… Read More