Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Tag Archives: CHD

The Friday Focus – 13/02/15

13/02/201513/02/2015

This week has been all about raising awareness of CHDs for heart week and nearly all of my blog posts this week have been focused on this. It’s also a week where I’ve been a little more anxious over Jessica as she has seemed very out-of-sorts and tired this week. Chances are that it is… Read More

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Stories from the heart – The Hearty Life

12/02/201517/02/2015

Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from Mary who blogs over at The Hearty Life.  Mary’s third child Poppy was diagnosed with a CHD at her 20 week scan and sadly was stillborn at 40 weeks.  Thank you so much to Mary for being… Read More

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To us on the day we became heart parents

10/02/201528/02/2018
To us on the day we became heart parents - Little Hearts, Big Love

I see you sitting there in that scan room. Cold with fear and the terrible realisation that something is wrong, very wrong with your baby’s heart. I see you clinging to each other. Neither wants to voice the terrible thought that fills both your minds – that your child will die. I see your tears,… Read More

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Congenital heart defects: books for children

10/02/201513/03/2018
A copy of "Patch the Brave Heart Lion" and the text "Congenital heart defects: books for children"

One of the challenges that I will face as Jessica gets older is trying to explain her heart condition to her. Having some children’s books about CHD will help us explain why she has a zipper scar on her chest and needs to go into hospital for surgery and other procedures. Trying to find children’s… Read More

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Review: Heart Warriors – Amanda Rose Adams

09/02/201503/04/2019

Amanda Rose Adams’ son Liam was diagnosed with several complex congenital heart defects (CHDs) at a second trimester ultrasound scan. His parents were faced with the choice to have a late termination or put their child through countless open-heart surgeries in order to give him a chance to survive. Heart Warriors is Amanda’s account of… Read More

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Stories from the heart: Northumberland Mam

09/02/201505/02/2015

Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from the lovely Kim who blogs over at Northumberland Mam. Kim and her two daughters were all born with a CHD which remained undetected until a hospital visit for an unrelated concern. Here’s the story of her heart… Read More

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Black & White Photography Project #31

07/02/201521/10/2017
A black and white photo of my hands forming a heart around Jessica's zipper scar

As it is CHD Awareness Week, I am sharing a photo of my little heart warrior and her zipper scar for this week’s black and white photography project.  Her scar is the outward sign of everything that she has endured to get to where she is today. I am so very proud of her and… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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