There is a fear that lurks at the back of my mind. It is always there. Most days I can push it away, almost forget about but every so often, something will bring it back into sharp focus. Sometimes the triggers are completely unexpected – a photograph glimpsed, a line spoken in a movie, a… Read More
Darling Jessica, This time four years ago, we didn’t know if we would even have four days with you – to have been blessed with four years is just amazing. What a rollercoaster those four years have been with all your hospital stays and heart surgeries. You have been through so much in your four… Read More
Dear friends and family From the day we found out about Jessica’s heart condition, you have been there supporting us, encouraging us, praying for us. You have cried with us, held your breath in hope with us and celebrated each successful step of the journey with us. We were devastated and scared at the start,… Read More
The last month has given me a bit of a reminder of the uncertainty that comes with life as a heart family when Jessica’s sats were lower than normal at a routine community nurse visit, prompting an unexpected hospital visit the next day for a more in-depth check-up. Thankfully it seems to have been just… Read More
I can still remember the first time I took Jessica swimming. It was on a day out at Butlins when she was ten months old. We’d been in the pool about ten minutes before I became concerned about how blue she was. By the time we managed to get out of the pool, she was… Read More
Both my girls have been breastfed into toddlerhood – Jessica until she was 17 months old and Sophie is still going strong at 21 months with no sign that she is planning on stopping any time soon! I’ve always been quite determined where breastfeeding is concerned – with Jessica it felt very much like the… Read More
I wasn’t expecting the mid-week trip to hospital for a heart check-up on Jessica after she had low oxygen saturation levels during our routine monthly community nurse visit. Things have been so stable for so long, that it has almost lulled me into a false sense of security – most of the time life ticks… Read More