Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Tag Archives: CHD

Preparing for my heart child to start school

08/09/201625/07/2017

The first day at school is such a huge milestone.  Like many other mums on their child’s first day at school, I was emotional.  My baby was taking another step out into the world; the start of a new adventure. An adventure that I might get to hear about, but not be a part of. … Read More

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Now you are five

06/09/201603/04/2019

Darling Jessica Yesterday you started school for the first time and today we are celebrating your fifth birthday.  Can it really be five years since I held you in my arms for the first time and felt such a huge rush of joy that you were here?  Somehow those five years seem to have flown… Read More

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Heart to Heart – August 2016

15/08/201619/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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My Sunday Photo 31/07/16 – #bigkidsforGOSH

30/07/201604/08/2016

This week’s Sunday Photo sees me joining with #bigkidsforGOSH, a social media campaign started by Vicki, a fellow heart mummy who blogs at The Honest Confessions of a NICU Mum, to raise money for Great Ormond Street Hospital who saved her son’s life. The #bigkidsforGOSH campaign is inspired by the story of Peter Pan, who… Read More

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Enjoying a family fun day

29/07/201629/07/2016

Friends of PICU is a charity which is very close to our hearts as it helps support children on the Paediatric Intensive Care Unit at Southampton General Hospital, where Jessica has been cared for several times following her heart surgeries. The annual family fun day is one of the events we try to attend to… Read More

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The Friday Focus 29/07/2016 – Having fun out and about

29/07/201628/07/2016

This week might not have been quite as hot and sunny last week, but it’s been mostly dry and quite pleasant temperature-wise and we’ve been enjoying spending plenty of time outdoors and making the most of it.  We’re slowly ticking off things on our summer activities list and enjoying getting out and about.  I’ve also… Read More

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My Sunday Photo 17/07/16

16/07/201629/07/2016

Whilst recovering from each of her heart surgeries, Jessica was cared for on the paediatric intensive care unit at Southampton General Hospital.  Yesterday we attended the Friends of PICU Family Fun Day to help raise money to support children on the unit and their parents. The first people we saw on our arrival at the… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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