Raising awareness of congenital heart defects and the importance of the 20 week scan is something that is very important to me as a heart parent. I know that had Jessica’s heart condition not been detected at the 20 week scan, she would not be here today. Sadly, even with early detection, there are still… Read More
Most of us will have seen the heartbreaking images shared on social media and in the newspaper of the lifeless body of three-year old Aylan Kurdi, who was found washed up on a Turkish beach. An innocent child, just one of countless other children who have died trying to escape their war-torn home. I look… Read More
There are several fundraising events for charities close to our heart that we try to attend every year and the Charlie Jones Foundation Family Fun Day is one of them. It’s a charity that was set up by heart parents Donna and Dean Jones after the death of their 5-month old baby Charlie from hypoplastic… Read More
February – a month that is all about hearts. Hearts, flowers, chocolates, Valentine’s cards. For me as a mummy to a child with a complex congenital heart defect (CHD), February also has added significance with regards to hearts as it is National Heart Month, with Heart Week taking place from 7th-14th February. Since my daughter… Read More
I think the drama and poorliness of the last couple of weeks have caught up with me a bit this week as my general feeling this week has been just: I’ve had a few unsettled nights, lots of thoughts churning through my head and have generally not managed enough sleep this week. We’ve got our… Read More
On Saturday, Jessica and I went to a charity Christmas fayre organised by my friends Lisa and Ashley in memory of their daughter Amelia, who died earlier this year at the age of 3 years and 4 months a result of an epileptic seizure. Sadly despite having suffered around 40 fits from the age of… Read More
We’ve been to a lot of Christmas parties organised by the various charities that have helped us along our journey as a heart family but the one we were invited to last year topped them all – the annual children’s Christmas party at 10 Downing Street. We were invited through Jessica’s community nurse who worked… Read More