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To us on the day we became heart parents - Little Hearts, Big Love

To us on the day we became heart parents

I see you sitting there in that scan room. Cold with fear and the terrible realisation that something is wrong, very wrong with your baby’s heart. I see you clinging…

A copy of "Patch the Brave Heart Lion" and the text "Congenital heart defects: books for children"

Congenital heart defects: books for children

One of the challenges that I will face as Jessica gets older is trying to explain her heart condition to her. Having some children’s books about CHD will help us…

Review: Heart Warriors – Amanda Rose Adams

Amanda Rose Adams’ son Liam was diagnosed with several complex congenital heart defects (CHDs) at a second trimester ultrasound scan. His parents were faced with the choice to have a…

Stories from the heart: Northumberland Mam

Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from the lovely Kim who blogs over at Northumberland Mam. Kim and her…

From the mouths of babes #6

From the mouths of babes is a weekly linky which invites you to share a post, old or new, about something your children have said. Perhaps they have just started…

A black and white photo of my hands forming a heart around Jessica's zipper scar

Black & White Photography Project #31

As it is CHD Awareness Week, I am sharing a photo of my little heart warrior and her zipper scar for this week’s black and white photography project.  Her scar…

Me with Jessica and Sophie all wearing red for heart awareness day

Silent Sunday 08/02/15

An infographic summarising the different signs that your baby might have a heart defect. H - heart rate (too fast or too slow?) E - energy (sleepy, quiet or falling asleep during feeding?) A - appearance (pale, waxy, dusky, blue or grey skin colour?), R - respiration (too fast or too slow?) and T - temperature (cold to touch - especially hands and feet?)

Think HEART: the signs that your baby may have a heart defect

Congenital heart defects (CHDs) affect approximately 1% of all babies.  Around a third of these are detected during pregnancy and another third during the standard newborn checks that are carried…

Friday Fabulous Five #22

The Friday Fabulous Five is my regular feature where I share five of my favourite posts that I have read in the previous week – posts that have made me…

The Friday Focus – 06/02/15

I’ve been flying solo this week as hubby has been away working on an event all week. On the whole, it’s not been too bad though apart from having one…