Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

Heart Week 2016: help Tiny Tickers improve survival rates for heart babies

13/01/201604/11/2016

February is all about hearts. For most people, the thought of hearts in February means Valentine’s Day. For me as a heart mummy, it’s all about National Heart Month, and Heart Week which falls between 7th and 14th February. Throughout February, and during Heart Week 2016 especially, I will be sharing posts to help raise… Read More

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New Year – a heart mummy’s perspective

07/01/201607/01/2016

A new year is like opening a book full of blank pages. Wondering what is going to be written on those pages. At the start of the new year, the thought of those blank pages frightens me. What things will be written on them? That there will be happy moments, exciting moments, fun moments I… Read More

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Heart to Heart – December 2015

15/12/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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How Christmas on the cardiac ward taught me to be thankful

10/12/201514/12/2015

The run-up to Christmas can be a very stressful time – so much to do, cards to write, presents to buy, parties to attend – busy, busy, busy. This time four years ago though, we could barely focus on the festive season.   All around us, it seemed everyone was excited about Christmas, but for us… Read More

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Heart to Heart – November 2015

15/11/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Two Important Ways to Give Your Baby’s Heart a Better Start

20/10/201528/03/2017

Raising awareness of congenital heart defects and the importance of the 20 week scan is something that is very important to me as a heart parent. I know that had Jessica’s heart condition not been detected at the 20 week scan, she would not be here today. Sadly, even with early detection, there are still… Read More

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Heart to Heart – October 2015

15/10/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Support and community are two of the things that I feel are very important as a heart parent – the knowledge that we are not alone in our journeys and that there are others who can empathise. It is one of the reasons why I set up my Heart to Heart linky – to help… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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