Sharing our experiences of parenting a child with a congenital heart defect
With February being heart month, I’ve been focusing on raising awareness of CHD, particularly during heart week (7th – 14th February). It’s been lovely to feature some guest posts on my blog during heart week and to have other heart families share their stories – thank you to Northumberland Mam, The Hearty Life and Adventures… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from Lee who, with his wife Freya, blogs over at Adventures from the Heart. Lee and Freya’s second child Erin was born with hypoplastic left heart syndrome, the same heart condition that my daughter Jessica has and was… Read More
The Friday Fabulous Five is my regular feature where I share five of my favourite posts that I have read in the previous week. However, as this week is CHD Awareness Week, I’m focusing instead on five posts about CHD that I’d like to share with you: This post from Samuel Davy’s Journey –… Read More
This week has been all about raising awareness of CHDs for heart week and nearly all of my blog posts this week have been focused on this. It’s also a week where I’ve been a little more anxious over Jessica as she has seemed very out-of-sorts and tired this week. Chances are that it is… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from Mary who blogs over at The Hearty Life. Mary’s third child Poppy was diagnosed with a CHD at her 20 week scan and sadly was stillborn at 40 weeks. Thank you so much to Mary for being… Read More
I see you sitting there in that scan room. Cold with fear and the terrible realisation that something is wrong, very wrong with your baby’s heart. I see you clinging to each other. Neither wants to voice the terrible thought that fills both your minds – that your child will die. I see your tears,… Read More
One of the challenges that I will face as Jessica gets older is trying to explain her heart condition to her. Having some children’s books about CHD will help us explain why she has a zipper scar on her chest and needs to go into hospital for surgery and other procedures. Trying to find children’s… Read More