My daughter Jessica was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This is a complex CHD where the left side of the heart doesn’t form correctly. Basically this means that Jessica only has half a working heart. Babies born with HLHS need to have heart surgery in order to survive.… Read More
The two photos below were taken three years ago today. They capture some precious moments with Jessica as we prepared for her to go to theatre for the second time since she was born. I remember it like it was yesterday. The anxious waiting, not wanting to leave her cot for a moment. Wanting to… Read More
My little miracle Jessica celebrated her third birthday at the weekend. It is amazing to look back and remember how bleak her prognosis was and here we are now, blessed with a beautiful 3 year old who is doing so well. Her birthday is also one of her heart days as she had her first… Read More
Our fourth and final book bench trail was the Bloomsbury trail. With just 15 benches left to find, we were determined to finish off our summer Book Bench challenge. Our trail started at St George’s Square, which was a burial ground back in Georgian times (one of Oliver Cromwell’s granddaughters is interred there). It was… Read More
My little miracle Jessica turns three tomorrow and so this week’s word of the week is: Looking back over the last three years I have a lot to be thankful for. I am thankful for: All the wonderful medical staff that have cared for Jessica since she was first diagnosed and especially to Dr Wilson… Read More
My biggest source of inspiration has to be my beautiful daughter Jessica. As most of my regular blog readers will know, Jessica was born with a congenital heart defect called hypoplastic left heart syndrome, which basically means that she has half a working heart.  She has endured several rounds of surgery (including one procedure whilst… Read More
My husband and I held each other tightly as we sobbed together in the hospital chapel, our world having fallen apart just moments earlier when we had been told that our unborn baby girl was unlikely to be suitable for surgery and would probably only live a few hours at best. In the midst of… Read More