I remember the first time I set foot in my home after Jessica was born. We’d been in hospital for a month. How strange my house felt, how I looked around as if I was seeing it for the first time. What was once familiar suddenly felt very unfamiliar. I… View Post

The Friday Focus 31/07/15

The Friday Focus 31/07/15

I wasn’t expecting the mid-week trip to hospital for a heart check-up on Jessica after she had low oxygen saturation levels during our routine monthly community nurse visit. Things have been so stable for so long, that it has almost lulled me into a false sense of security – most… View Post

The Friday Focus – 30/01/15

The Friday Focus – 30/01/15

This week has been a bit of a mixed one on the whole. There have been good moments, fun moments, grumpy moments, tired moments and anxious moments all thrown in together. We had Jessica’s cardiac check-up yesterday and whilst we are thankful that her heart function is currently good and… View Post

Christmas on the cardiac ward

Christmas on the cardiac ward

The phone call came towards the end of November – we had a date for Jessica’s open-heart surgery. We had hoped that we might be able to have Christmas together first but it was not to be – the surgery was set for 14th December. We couldn’t focus on the… View Post

The Friday Focus – 28/11/14

The Friday Focus – 28/11/14

This week could best be described as just being one of those weeks, becoming a little more towards the end of the week thanks to a unexpected trip to A&E for me. Towards the end of dinner on Thursday, I suddenly started to feel quite unwell which resulted in me… View Post

Being a heart dad: a personal reflection

Being a heart dad: a personal reflection

For Father’s Day, I asked my husband to share a post about his journey as a heart daddy. This is his raw and honest account of his feelings about the journey we have taken as a family so far. It has been very hard and emotional for him to share… View Post

Children’s Heart Week Day 4: Hospitals

Children’s Heart Week Day 4: Hospitals

We’ve spent quite a lot of time in hospital over the last three years. Jessica has been under the care of six different hospitals since she was born for various reasons. She was born at Princess Anne Hospital in Southampton. Shortly after birth she was transferred to Southampton General Hospital.… View Post