Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Tag Archives: hospitals

Re-adjusting to life at home after being in hospital

18/01/201812/07/2018
A drawing of Jessica in hospital and a drawing of us at home as a family after the hospital stay

I remember the first time I set foot in my home after Jessica was born. We’d been in hospital for a month. How strange my house felt, how I looked around as if I was seeing it for the first time. What was once familiar suddenly felt very unfamiliar. I was glad to be home… Read More

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The Friday Focus 31/07/15

31/07/201530/07/2015

I wasn’t expecting the mid-week trip to hospital for a heart check-up on Jessica after she had low oxygen saturation levels during our routine monthly community nurse visit. Things have been so stable for so long, that it has almost lulled me into a false sense of security – most of the time life ticks… Read More

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The Friday Focus – 30/01/15

30/01/201513/02/2015

This week has been a bit of a mixed one on the whole. There have been good moments, fun moments, grumpy moments, tired moments and anxious moments all thrown in together. We had Jessica’s cardiac check-up yesterday and whilst we are thankful that her heart function is currently good and things are fairly stable, we… Read More

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Christmas on the cardiac ward

11/12/201426/01/2017

The phone call came towards the end of November – we had a date for Jessica’s open-heart surgery. We had hoped that we might be able to have Christmas together first but it was not to be – the surgery was set for 14th December. We couldn’t focus on the thought of Christmas – not… Read More

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The Friday Focus – 28/11/14

28/11/201401/01/2015

This week could best be described as just being one of those weeks, becoming a little more towards the end of the week thanks to a unexpected trip to A&E for me. Towards the end of dinner on Thursday, I suddenly started to feel quite unwell which resulted in me needing to call my mother-in-law… Read More

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Being a heart dad: a personal reflection

15/06/201413/03/2018
Baby Jessica in intensive care, stroking Daddy's face

For Father’s Day, I asked my husband to share a post about his journey as a heart daddy. This is his raw and honest account of his feelings about the journey we have taken as a family so far. It has been very hard and emotional for him to share this. I would like to… Read More

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Children’s Heart Week Day 4: Hospitals

15/05/201417/07/2017
Jessica at a few weeks old asleep in a cot at John Radcliffe hospital

We’ve spent quite a lot of time in hospital over the last three years. Jessica has been under the care of six different hospitals since she was born for various reasons. She was born at Princess Anne Hospital in Southampton. Shortly after birth she was transferred to Southampton General Hospital. This is where her heart… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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