Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Tag Archives: CHD

Friday Focus 05/05/17 – Being thankful for the here and now

05/05/201704/05/2017
Thankful - this week's word of the week. A cartoon of the word thankful with drawings of me having a scan and me giving Jessica a cuddle

On 4th May 2011 I woke in the early hours of the morning and cried as I remembered the events of the previous day. Scared for my unborn baby’s future, scared of the journey that lay ahead. I wished I could wake in the morning and find it had all been a bad dream.  … Read More

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Six years on: our journey as a heart family

03/05/201703/05/2017
Jessica recovering from her third open-heart surgery

Six years on. Six years since the scan that changed our lives completely. The start of our journey as a heart family. One minute we were expecting a normal healthy baby. The next, we were heart parents. Our lives turned upside-down; excitement replaced by fear. Would our baby survive? What would the future hold? And… Read More

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Me and Mine – April 2017

30/04/201730/05/2018
Me, hubby, Jessica and Sophie sitting around a tree in the fairy village

This year is flying by! I can’t quite believe that April is nearly over and my big girl has started her last term in reception. The end of April has crept up on me and I left it to the last minute to take this month’s Me and Mine photos.   I’m not quite sure… Read More

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Heart to Heart – April 2017

15/04/201710/04/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Heart to Heart – March 2017

15/03/201705/04/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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The mummy I might have been: how did being a heart parent change me?

07/03/201708/03/2018
Me holding Jessica in intensive care

When does parenthood begin? That moment when everything changes; when that person we once becomes someone new; someone whose decision-making and thoughts are changed forever. Does it begin with the birth of a new baby – when we “officially” become mummy and daddy? Or does it start further back with two little lines on a… Read More

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My Sunday Photo 19/02/17

18/02/201705/04/2017

Being a heart family brings many challenges and struggles, but it has also brought many moments of joy too. Meeting other heart families, building friendships and seeing Jessica bond with other heart children has been one of the biggest positives of this journey. To be able to talk to another family who understands the rollercoaster… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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