My little miracle Jessica celebrated her third birthday at the weekend. It is amazing to look back and remember how bleak her prognosis was and here we are now, blessed with a beautiful 3 year old who is doing so well. Her birthday is also one of her heart days as she had her first… Read More
My little miracle Jessica turns three tomorrow and so this week’s word of the week is: Looking back over the last three years I have a lot to be thankful for. I am thankful for: All the wonderful medical staff that have cared for Jessica since she was first diagnosed and especially to Dr Wilson… Read More
My biggest source of inspiration has to be my beautiful daughter Jessica. As most of my regular blog readers will know, Jessica was born with a congenital heart defect called hypoplastic left heart syndrome, which basically means that she has half a working heart. She has endured several rounds of surgery (including one procedure whilst… Read More
My twin sister and her best friend met on the first day of infant school and have been best friends ever since. I envy her that friendship. It must be wonderful to have such a close friend with whom you share so much history and memories. I have had many friends over the years, but… Read More
My husband and I held each other tightly as we sobbed together in the hospital chapel, our world having fallen apart just moments earlier when we had been told that our unborn baby girl was unlikely to be suitable for surgery and would probably only live a few hours at best. In the midst of… Read More
Today is my fifth wedding anniversary and so my word for this week has to be love. My husband’s love has helped me keep going through all the struggles of the last five years. From losing my dad a few months after we got married, to finding out our first child had a serious heart… Read More
“If I was seeing this in a newborn baby, I would be advising against surgery as it is so unlikely to be successful.” I was 22 weeks pregnant with my first baby. Two weeks’ earlier, at the 20 week scan, my world had fallen apart. Our baby girl had a serious and complex heart… Read More