Jessica’s surgery has had to be rearranged yet again. This time we made it into hospital, had an overnight stay and got Jessica ready for the surgery in the morning, only to be told that the surgeon was unwell, PICU was full and the surgery would have to be postponed again.
I know that it cannot be helped and that the doctors and nurses really don’t want to have to keep cancelling Jessica’s surgery. It is hard though to go through the build-up, get ourselves mentally prepared for it all and then return to normality, knowing that we will have to go through the process again. It’s hard for hubby and myself when we can understand and accept the reasons for this happening. For Jessica though, it is very upsetting. She gets so excited about having her “sleepover” and doesn’t understand why Mummy can’t just phone the hospital and make it all happen for her. I had hoped that actually getting to have a sleepover at the hospital would help ease the disappointment this time, but she was still very upset. I was quite relieved that she did manage to go to school with a smile on her face on Wednesday morning once she had had a chance to work through her emotions.
Every cloud has a silver lining though. For us, that silver lining is that we will now get to enjoy the festive season and be able to spend Christmas together at home as a family before we have to go into hospital once again. Jessica’s surgery has been rearranged for 28th December. I am hoping that the lack of elective surgery over the Christmas period will help reduce the odds of PICU being full and will mean that we are less likely to be rearranged again. Hopefully it will be third time lucky for us!
Having assumed that we would spend the run-up to Christmas in hospital also means that December is looking like a much quieter month than it normally would be. I can’t help thinking that this is also a good thing. It gives us the opportunity to slow down, to enjoy that time together without rushing about trying to do far too much and getting stressed out in the process.
Things I have loved this week:
- Sophie going to her first Girls’ Brigade session with Jessica who was a very proud and protective big sister. It was lovely to watch the way Jessica took her little sister’s hand and showed her what to do.
- Taking the girls ice skating for the first time.
- Watching Jessica and Sophie having fun with the toys in the ward playroom and riding the Little Tikes cars down the corridor.
- The way Jessica made sure Sophie was okay about leaving the hospital with Nanny and Auntie Fizz. She gave her a big cuddle at the door and said “now you mustn’t cry Sophie. Have a lovely time at Nanny’s house and I want you to tell me all about it when you come back and see me after my operation.”
- Jessica’s discovery that she could use the IV pole like a scooter. She soon realised that the quickest way to get around the ward was to stand on it and having Mummy push her around!
- All the lovely supportive messages from friends and family. It meant so much to know that we were in so many people’s thoughts and prayers.
- Spending time with my friend Katy who lives near the hospital.
- Having lunch at one of our favourite pubs from our student days. It hasn’t changed at all since we were at uni.
- Having a breakfast date with my lovely hubby.
- Getting to watch Jessica in her class assembly.
- Watching Sophie having fun with her friend at her toddler signing class.