The last week has been quite an emotional one overall. Seeing Jessica and Sophie performing in their ballet show was the highlight of the weekend for me. I have to confess I got quite tearful watching them on stage. It was so lovely to watch them dancing and clearly enjoying every moment of it.
The end of the school year is bringing with it the acute realisation once again of how quickly my girls are growing up. I really can’t believe that Jessica is nearly at the end of her reception year. We now know what class she will be in next year. She’s so excited about moving up. For me it’s more bittersweet. She’s grown up so much this year and saying goodbye to the end of another chapter always brings a tinge of sadness with it.
The biggest emotions for me this week though have been triggered by Jessica’s heart check-up last week. She’s lost weight since the last appointment and her oxygen saturation levels were lower than usual. Whilst I suspect that the weight loss is partly due to the virus that knocked her for six last month, her weight has been an ongoing concern. We’ve been referred back to the team meeting for further discussion about whether Jessica’s Fontan surgery needs to take place sooner rather than later. It is possible that the next step will be an appointment with the surgeon to discuss and set a date for this surgery.
As you can imagine, this has thrown me. We’ve been working on the assumption that surgery was not likely to be on the cards this summer; that we were probably still a year away from it. Now we’re back in limbo once again.
The ballet show provided a distraction from my thoughts though. It wasn’t until Tuesday morning that everything hit me hard all of a sudden. Breaking down at the toddler group at our local church, and being given time for some much needed prayer support was a reminder that I don’t have to be strong all the time. I don’t have to rely on my own strength alone – and I shouldn’t try. My faith has helped me so much on this journey so far and it will continue to be a source of strength to me, along with the love, support and prayers of family and friends.
We don’t know yet what the plan for Jessica is likely to be. The team meeting takes place early next week and we will know more afterwards.
Things I have loved this week:
- Going to Jessica’s school summer fayre – even though we could only stay for a short time.
- Jessica getting her platinum reading racoon certificate for having read 150 books.
- Getting Jessica’s first school report and reading her teacher’s comments about her being “kind, thoughtful and caring” which made me very proud. She’s at the expected level for everything and exceeding on a couple of things which is brilliant.
- Seeing my Sophy’s Rose bloom for the first time.
- Having our dinner in the tepee in the garden.
- Making nature wands at toddler group.
- Putting together our summer activities list.
- Paddling in the stream with Sophie at Denham Country Park.
- Jessica learning how to play “Twinkle Twinkle Little Star” on the piano.
Linking up with The Reading Residence for Word of the Week.