We’re now just over a week post-surgery and Jessica has been a little superstar. I am so, so proud of how well she is coping with her recovery and how much she is just taking in her stride. She is so brave. She’s had a lot of chest secretions since her surgery which have resulted in her needing a lot of chest physio and suction to help clear her chest. Having this done has clearly been very unpleasant and yet she has understood and accepted that it’s to help make her feel better and has been brilliant when it comes to allowing the doctors and nurses to do it. She made me chuckle a little a few days post-surgery when one of the nurses asked her how she was feeling and she responded with “fine”.
We moved up to high care from PICU on Tuesday evening. Jessica’s chest is gradually clearing and each day she is getting a little better. She is managing to get out of bed and sit in a chair for a few hours now and has taken a few very wobbly steps. The wires and tubes that were surrounding her last week have started to decrease – we’re now down to one chest drain, a couple of intravenous lines, oxygen and NG tubes and monitoring wires. It sounds a lot still but it’s a big difference from this time last week!
Sophie has also been a little superstar during this time. She is still with my mum at the moment and has been enjoying her sleepover with Nanny’s. I’m also impressed at how brave she has been. She’s never spent more than a couple of nights apart from us and never gone more than a day without seeing me, but she has also taken the enforced separation in her stride. I think it’s helped too that she’s been able to spend so much time with her cousins while staying with Nanny which she has loved. Hopefully once Jessica is well enough to move off high care and into a “normal” bay, we will be able to reunited as a family once again.
Things I have loved this week:
- A surprise late visit from Father Christmas at PICU – a bag of toys for Jessica to play with when she is feeling better and a bag of goodies for us, including useful things like body wash and lip balm.
- Having one of the consultants who looked after Jessica during her previous PICU stays coming over to look at her monitors and standing there beaming at us. He’s commented before about how many grey hairs Jessica has given him and I know he was anticipating another rough ride this time. So nice to see how happy he was with her progress.
- Jessica’s godmummy Katy dropping off a bag at PICU with snacks and Shloer for us to see the new year in and a cuddly toy for Jessica.
- Jessica waking up briefly just before midnight on New Year’s Eve and one of the doctors bringing a laptop over so she could watch the New Year fireworks at the London Eye.
- That first cuddle with Jessica on PICU three days after her surgery. It was so wonderful to be able to give her a proper cuddle again, even if it was just for a couple of minutes.
- Receiving a lovely card and a couple of very thoughtful gifts on PICU from some of my Tribal Chat blogging buddies.
- Chatting to some of the nurses who looked after us when we were first on PICU when Jessica was a newborn.
- Seeing Jessica’s happy little personality begin to re-emerge and to hear her say “love you too” and give me smiles again.
- Getting to talk to Sophie on FaceTime and watching Jessica talking to her sister. She’s been missing Sophie over the last few days.
- Watching Jessica having fun doing some arts and crafts with the play worker.
- Having so much love and support from friends, family and the wider social media community.