Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

Reflections of a heart mummy: it’s all in the little moments

20/07/201719/07/2017
A very smiley Jessica on the rocking horse at the park

It’s in the little moments that the reality of being a heart mum hits me most. The little moments that catch me off-guard and bring tears to my eyes. Seeing my daughter enjoying a ballet class. Watching her play in the playground with her friends. The way she reaches out to hold her little sister’s… Read More

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Heart to Heart – July 2017

15/07/201714/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Heart to Heart – June 2017

15/06/201713/06/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Tiny Tickers BBC Lifeline Appeal – how you can help save babies born with a heart defect

18/05/201718/05/2017
A picture of newborn Jessica holding her daddy's hand in intensive care following her first open-heart surgery.

As many of my readers will know, my daughter Jessica was born with a complex congenital heart defect (CHD) which was detected at my 20-week scan. Jessica’s heart condition was so severe that we were told she was unlikely to be suitable for surgery after birth. Thankfully, a pioneering surgery carried out while she was… Read More

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Heart to Heart – May 2017

15/05/201726/04/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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Six years on: our journey as a heart family

03/05/201703/05/2017
Jessica recovering from her third open-heart surgery

Six years on. Six years since the scan that changed our lives completely. The start of our journey as a heart family. One minute we were expecting a normal healthy baby. The next, we were heart parents. Our lives turned upside-down; excitement replaced by fear. Would our baby survive? What would the future hold? And… Read More

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Heart to Heart – April 2017

15/04/201710/04/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community.  It opens on the 15th of each month and stays open for a week so there is plenty of time to share your CHD-related posts. You can share… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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