Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

Swimming with my heart child

11/08/201513/08/2015

I can still remember the first time I took Jessica swimming. It was on a day out at Butlins when she was ten months old. We’d been in the pool about ten minutes before I became concerned about how blue she was. By the time we managed to get out of the pool, she was… Read More

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Heart to Heart – July 2015

15/07/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

It’s been a year since I first started my Heart to Heart linky. Over this last year, I have been blessed to be a part of a small community of heart families within the blogosphere who have shared their stories to help raise awareness of congenital heart defects and to help others who are travelling… Read More

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What it means to be a heart parent

14/07/201521/10/2017
Me and hubby holding baby Jessica in intensive care. You can hardly see her for all the wires and tubes.

It took just seven words to change my entire life. Seven words which broke my heart, shattered my dreams and turned my world upside down. Seven words from which I emerged a stronger and more compassionate person.   “There’s something wrong with the baby’s heart.”   In that moment, I felt fear colder and stronger… Read More

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Heart to Heart – June 2015

15/06/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

June: another significant month in the heart anniversary calendar for our family. The month in which we were given hope and offered the chance of an in-utero atrial septostomy to give Jessica a chance of being suitable for open-heart surgery after birth. It’s the little things that stand out for me throughout June – little… Read More

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Heart to Heart – May 2015

15/05/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

May is the month in which our heart journey first began, just over four years ago now. The 20 week scan appointment which turned our world upside down when we found out about our daughter’s congenital heart defect and the devastating appointment ten days later when we were told that she was unlikely to be… Read More

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Friday 13th – a day that changed our lives forever

13/05/201503/04/2019

Friday 13th May 2011. A day that was hugely significant for us; a hospital appointment that would change our lives forever. Looking back, I recall it as a series of flashback moments. Walking into the hospital holding hubby’s hand, my legs shaking and a sick feeling in the pit of my stomach. Sitting in the… Read More

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Four years of being a heart family

03/05/201503/04/2019

Four years ago, we walked into a scan room full of excitement at the prospect of getting to see our baby and left with our world turned completely upside-down. Four years since we started our journey as a heart family. Four years ago, we were devastated and scared, not knowing where or how we would… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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