June: another significant month in the heart anniversary calendar for our family. The month in which we were given hope and offered the chance of an in-utero atrial septostomy to give Jessica a chance of being suitable for open-heart surgery after birth. It’s the little things that stand out for me throughout June – little… Read More
May is the month in which our heart journey first began, just over four years ago now. The 20 week scan appointment which turned our world upside down when we found out about our daughter’s congenital heart defect and the devastating appointment ten days later when we were told that she was unlikely to be… Read More
Since the early days following Jessica’s diagnosis, I have found it helpful to get in touch or chat via social media to other heart families – hearing their stories or sharing experiences with someone else who has travelled a similar path. The sense of community amongst heart families was one of the things that really… Read More
Last month saw a big focus on CHD-related posts on my blog to help raise awareness during heart month and included six guest posts from other heart parents who shared their stories. A big thank you to my six guest-bloggers last month – Northumberland Mam, The Hearty Life, Adventures from the Heart, Heart Mummy, Sounding… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is the final guest post of the month and comes from Gemma who blogs over at Heart Mammi. Gemma is a mum of three children and her youngest daughter Martha Grace was born with an interrupted aortic arch and… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from Philippa who blogs over at Sounding Like My Mother. Philippa is a mum of five children, two of which have heart conditions. As is the case with 1 in 3 babies with a congenital heart condition, her… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from Helen, Heart Mummy to David who, like Jessica, has hypoplastic left heart syndrome, who is sharing the story of those early days from finding out about David’s heart condition and the first few days after his birth. … Read More