CHD awareness is a cause that is very close to my heart and we’ve been doing our little bit to help raise awareness over this last month. Jessica’s story is one of those featured on the Big Tick campaign by Tiny Tickers which focuses on improving detection of congenital heart defects at the 20 week… Read More
Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about her heart journey a few weeks before she was born. Since her arrival, we have got to know other heart families, in person through our… Read More
My daughter Jessica was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This is a complex CHD where the left side of the heart doesn’t form correctly. Basically this means that Jessica only has half a working heart. Babies born with HLHS need to have heart surgery in order to survive.… Read More
Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about her heart journey a few weeks before she was born. Since her arrival, we have got to know other heart families, in person through our… Read More
The two photos below were taken three years ago today. They capture some precious moments with Jessica as we prepared for her to go to theatre for the second time since she was born. I remember it like it was yesterday. The anxious waiting, not wanting to leave her cot for a moment. Wanting to… Read More
Heart to heart is a monthly link-up for heart families to share stories about their journeys. My eldest daughter Jessica has hypoplastic left heart syndrome and I started blogging about her heart journey a few weeks before she was born. Since her arrival, we have got to know other heart families, in person through our… Read More
One of the things I find challenging as a heart parent is dealing with people’s assumptions about my heart child. While many of them are well-meaning, they can be frustrating. Here are some of the assumptions that we have encountered. 1) “Oh don’t worry, my friend’s brother had a hole in their heart… Read More
