Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Author: Louise

Children’s Heart Week Day 2: The 20 week scan

13/05/201413/03/2018
Jessica at the 20 week scan

It’s three years today since we were told that Jessica was unlikely to be suitable for surgery and that she would be offered comfort care after she was born. However, a throwaway comment about in-utero surgery at that appointment led us to the first step in Jessica’s journey.  This pioneering procedure at 28 weeks’ gestation… Read More

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Children’s Heart Week Day 1: Some facts about CHD

12/05/201413/03/2018
Jessica in intensive care after her Norwood procedure

This week (12-18 May) is Children’s Heart Week. I have two beautiful daughters, one of whom has a severe and complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This means that the left side of her heart is severely underdeveloped. We first discovered that Jessica’s heart had not developed correctly at our… Read More

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Silent Sunday 11/05/14

11/05/201416/07/2017
A Duplo cake and a birthday card for Mummy
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Siblings – May 2014

10/05/201416/07/2017
Sophie and Jessica sitting on the sofa together

I love watching my girls together. They are (mostly) very loving towards each other. Jessica’s first reaction on seeing her sister in the morning is usually “Baby Sophie! Hold hands, baby! Baby kiss!” and Sophie just gives her the biggest gummiest smile. I am sure that Sophie reserves her biggest smiles for her big sister.… Read More

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It was inevitable

09/05/201416/07/2017
Sophie asleep in her cot

It was inevitable that the week leading up to my birthday would see hubby even more sleep-deprived than me due to working into the early hours on events followed by early morning starts. Naturally my two small children didn’t quite realise that the best birthday present to give mummy would be a good chunk of… Read More

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Mini Creations – Animals

07/05/201416/07/2017

Jessica loves painting. As Sophie was still snoozing when Jessica woke from her nap, it seemed an ideal opportunity for some mummy-toddler time and so out came the paints and the paper. Jessica used a combination of three colours (orange, green and blue) and two painting techniques (brush and fingers) to create a beautiful picture… Read More

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Silent Sunday 04/05/14

04/05/201416/07/2017
Sophie sitting in the Bumbo and playing her toy piano
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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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