Like many other children with CHD, Jessica has needed several operations. Her heart can never be fixed – surgery can only help improve her heart function. The usual surgical pathway for children with hypoplastic left heart syndrome (HLHS) involves three procedures. These are the Norwood procedure, Glenn procedure and the Fontan completion. The aim of… Read More
It’s three years today since we were told that Jessica was unlikely to be suitable for surgery and that she would be offered comfort care after she was born. However, a throwaway comment about in-utero surgery at that appointment led us to the first step in Jessica’s journey. This pioneering procedure at 28 weeks’ gestation… Read More
This week (12-18 May) is Children’s Heart Week. I have two beautiful daughters, one of whom has a severe and complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). This means that the left side of her heart is severely underdeveloped. We first discovered that Jessica’s heart had not developed correctly at our… Read More
I love watching my girls together. They are (mostly) very loving towards each other. Jessica’s first reaction on seeing her sister in the morning is usually “Baby Sophie! Hold hands, baby! Baby kiss!” and Sophie just gives her the biggest gummiest smile. I am sure that Sophie reserves her biggest smiles for her big sister.… Read More
It was inevitable that the week leading up to my birthday would see hubby even more sleep-deprived than me due to working into the early hours on events followed by early morning starts. Naturally my two small children didn’t quite realise that the best birthday present to give mummy would be a good chunk of… Read More
Jessica loves painting. As Sophie was still snoozing when Jessica woke from her nap, it seemed an ideal opportunity for some mummy-toddler time and so out came the paints and the paper. Jessica used a combination of three colours (orange, green and blue) and two painting techniques (brush and fingers) to create a beautiful picture… Read More
